Lived experience of women referred with preeclampsia with severe features at Kawempe National Referral Hospital

Abstract

Introduction: Timely referrals are essential for accessing specialized care, ensuring comprehensive treatment, and facilitating smooth care transitions for preeclampsia mothers in limited resource settings. However, in Uganda, referral challenges often cause delays in decision-making, reaching facilities, and receiving care. The study aimed to explore the lived experience of women referred to Kawempe National Referral Hospital (KNRH) with preeclampsia with severe features during the study period. Methodology: This study utilized an exploratory phenomenological qualitative research design to gain a deeper insight into the lived experiences of women with severe preeclampsia who were referred to Kawempe National Referral Hospital. Data was collected through in-depth interviews and key informant interviews using a study guide. The interviews were transcribed verbatim and analyzed thematically using NVIVO 12 software. The study was approved by SOMREC, written informed consent was obtained and participation in the study was voluntary. Results/findings: The study found that women's perceptions of the referral process were influenced by their previous experiences, advice from healthcare providers, and the severity of their symptoms. Women demonstrated a lack of understanding of their medical condition and employed various coping strategies, including emotional-focused coping, problem-focused coping, and meaning-focused coping. Healthcare providers played a crucial role in providing emotional support, information, and care to women. Conclusion and Recommendation: The findings highlight women's complex perceptions and understanding of the referral process, influenced by previous experiences, healthcare provider advice, and symptom severity. Despite demonstrating resilience and employing coping strategies, women faced challenges in navigating the healthcare system. To improve maternal health outcomes, a multifaceted approach is necessary, prioritizing clear communication, emotional support, and counselling, as well as strengthening referral systems, improving access to healthcare, and addressing financial constraints.