Lived experiences of women diagnosed with cervical cancer in Kampala, Uganda

Abstract

Cervical cancer remains a major public health concern in Uganda, with women often diagnosed at advanced stages and experiencing significant psychological, emotional, and social challenges. This study explored the lived experiences of women diagnosed with cervical cancer in Kampala District. A qualitative approach was adopted, specifically using a phenomenological research design. A purposive sampling technique was employed to select 12 women aged 25–54 who had been diagnosed with cervical cancer within the past five years. Data was collected using in-depth interviews and analyzed manually using thematic analysis. Thematic analysis revealed key findings presented in themes: Initial Responses to diagnosis, Emotional Turmoil, Identity Crisis, Stigma, Social dynamic changes, Initial Perceptions, Empowerment through learning, Coping Mechanisms and Sources of Strength, Strengthening Health System Response and Structural and Financial Barriers in Healthcare. Findings revealed that women diagnosed with cervical cancer experience a complex interplay of emotional distress, social stigma, and shifting family dynamics. Despite these challenges, many relied on spirituality, family, and peer support to cope. The study underscores the need for culturally sensitive, holistic, and patient-centered interventions such as psychosocial counseling, financial and social support, clear patient education, and compassionate communication to improve the care and quality of life of women living with cervical cancer.